Tuesday, January 24, 2006

Echo update and IFSP

Benji had his IFSP last week on January 18th. He will be continuing his therapy every other week. He is improving, but his muscles in his legs are still week. He will also have an eating evaluation on the 30th. He bites but he don't chew very well, if at all. So, that will be done. He has progressed very well.

While TEIS and Foundations were here for the meeting he did two things he had never done before. The first was he was dropping his pop ons through the exersaucer seat and watching it. He was doing cause and effect! At 10 months! Wow! The second thing he did was while he was dropping his pop-onz through his exersaucer, he was standing up, by him self, without holding onto anything. Of course as soon as he realized he was doing it he sat down. I think it scared him that he was standing. He didn't know what to do next.

Anyhow... he is now cruising around the furniture easily. He will walk with his walk behind toy. Benji has started to defend himself against Josh and Micah. He won't let them just take his toys anymore and he sometimes takes toys away from them.

It was so cute, Jeff took the boys to the store last week when I was sick and Micah had a cookie in each hand. Benji turned around and grabbed one and stuck it in his mouth before Micah knew what was going on. LOL... so cute. Obviously Micah wasn't too happy about it.

Then we come to today. Today Benji went to see Dr. Hermo-Weiler. He now weighs 21 lbs 12 ozs. Dr. Hermo is a bit concerned because he has only gained 12 ozs since his October check up. On the other side... the stenosis in the aortic valve appears to be unchanged. He wasn't really cooperating during the echocardiogram wanting to do it himself or crawl off the table. She got a couple good measurements while me and one of the aides were holding him. This is SOOOO AWESOME!! On top of that his blood pressures were close. His right arm was 92/50 with his pulse at 117 and his right leg was 95/64 with his pulse at 132. When she did his pulsox oxygen was 97-98% and pulse was 122 on the left foot.

The CoArc repair still looks beautiful! And she don't see him again until May. He does continue on his Propranolol.

Praise the Lord for He is good.
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