Showing posts with label sensory integration. Show all posts
Showing posts with label sensory integration. Show all posts

Monday, April 16, 2012

Autism Awareness - behaviors

To be clear, I am not diagnosed with Autism. I am diagnosed with sensory processing disorder and disorder of childhood with some hyper-kinetic behaviors. SPD does typically go hand in hand with many Autism Spectrum Disorders and the hyper-kinetic can also be associated with attention deficit hyperactivity issues. (That said, this is my disclaimer.)

For children that have SPD and that are on that Autism spectrum many behaviors are uncontrollable by the child themselves. They need help from those around them. For myself, I have "warning signs" that I exhibit prior to having a problem. Adults that pay attention to me and that get to know me learn these signs pretty quickly. My sensory issues can be closely related to what I eat and so my diet matters too.

In a classroom environment, church or school, I sometimes get overwhelmed if it is loud, bright, chaotic, etc. Mom described it very well the other day when she was explaining how her migraine made her feel. Any little thing hurt, pitches of sound, touch, intensity of light, too much activity going on, all of that can contribute to my behavior.

My "warning signs" start with a complaint. I will say its too loud or say I need my sunglasses. The next step is I get into defensive postures, climbing under tables or desks, cuddling into a trusted adult/sibling, hiding. If the issue is not resolved I get agitated. I sling my arms out at people to chase them away, not trying to hurt them, I just don't want to be social. This is when mom needs to be gotten because if it gets worse from here, it gets ugly.

Why am I sharing this? Not to leave a stigma. I share because there is plenty of time to defuse the situation. If you are dealing with a child like me, you cannot yell at them to correct them, it will only make the situation worse. Yelling at children with sensory issues is an assault on multiple senses. One of my brothers has sensory integration disorder and one of his teachers did not understand what that meant so when she would correct him she would raise her voice, his behavior would get worse, then she would yell. This would continue until he burst out into a rage of throwing objects. The rage would not have happened had the teacher been able to keep her voice calm.

My advice? Get help. Learn how to cope with the behaviors. You are not alone.

Wednesday, July 27, 2011

Visiting the Dentist

Today is one we knew, deep down, that would eventually come.

One of my big sensory issues is that I have an oral fixation. I like to suck my thumb. No big deal, right?

My dentist is VERY concerned that my habit is doing some damage to my mouth. It appears that because I suck my thumb so much it is causing my teeth to miss-align.

So, this morning I get to go to the dentist to have an appliance put on my teeth to keep me from sucking my thumb and to prevent my teeth from moving the wrong way anymore.

I am nervous. And I am afraid its going to hurt.

Friday, January 28, 2011

Disorder of Childhood ... in response to a question

Benji was diagnosed with Disorder of Infancy, Childhood, or Adolescence NOS nearly two years ago. Essentially what the diagnosis says is that the child is not developing typically and there is a suspicion of a disorder in place. Having the diagnosis of Disorder of Childhood NOS gives the developmental pediatrician room to do more testing and more observation. Many childhood disorders can not be correctly diagnosed until the onset of adolescence.

313.9 Disorder of Infancy, Childhood, or Adolescence Not Otherwise Specified
This category is a residual category for disorders with onset in infancy, childhood, or adolescence that do not meet criteria for any specific disorder in the Classification. (taken from www.dsm5.org)

In Benji's case, at the time of diagnosis he had speech apraxia, mild hypotonia, and sensory integration disorder. To be on the conservative side, doctors are waiting to see what age and therapy takes care of for him. It is fully possible that the speech, tone and sensory issues are all related to his heart surgery that was required to repair his aorta. It is also fully possible that the onset was coincidental. Benji does have difficulty in social situations. He is also very focused on things of interest and distracted when it comes to lack of interest.

To be honest, we are praying that Benji is cured of all of the issues and not have any diagnosis. Until that time however, we will be working with his doctors to determine what it is that is going on. One of the hypothesis that is in contention is that Benji has a form of Asperger's Syndrome. This may or may not be the case.

Wednesday, January 12, 2011

Sensory Processing Disorder is REAL

"Everybody has some sort of sensory 'issue', especially in kindergarten."

Ever heard a phrase similar to that? Ever get down right mad when it was during your child's IEP or 504plan meeting? Ever have your child's SPD symptoms completely dismissed even though you have an official diagnosis from one of the top Children's Hospitals in the country?

We have heard this. Not just from his current school. Other places too.

Benji is tactile defensive, oral defensive, visual and auditory defensive while also being deep pressure seeking. He is able to function because we work with him and he has had therapy for most of his life. Yet, there are still issues.
  • He will fall out of his seat for the deep pressure
  • He will fall to the ground.
  • He does chew on things 
  • He will refuse to eat something because of how it looks or feels
  • He can not focus in a room that is loud and busy
  • He has a difficult time going to stores, malls, or public play areas
 There are some fun quirks too. Benji can blow your mind with his intelligence if he decides to share it with you. He is very stubborn, but in the same light once he decides to do something it will get done. So, while he may not sit still while doing quiet work or during circle time, most of the time he is fully aware of what is going on and taking it in.

There are ways to treat Benji's sensory issues.
  • a sling swing 
  • BIG hugs
  • jumping on the mini trampoline
  • carrying a heavy ball up and down the hall
  • simple exercises (jumping jacks, sit-ups w/ exercise ball, touching toes)
  • playing in dry beans
  • painting with shaving cream
  • nice warm epsom salt bath (15-20 minutes)
  • soft long sleeve shirts w/o tags
  • allowing his silky (piece of satin fabric like a security blanket)
There is more, but that is just an idea. When his SPD gets out of control there is only a limited time that we have to stop a meltdown. He gives us warning signs.
  • He starts getting clingy or appearing tired
  • Sucks his thumb, twirls hair
  • Starts rocking if sitting
  • Gets whiny (at this point the environment HAS to change)
  • meltdown
A meltdown is not the same as a tantrum. Tantrum are typically because a child didn't get something they wanted or wasn't allowed to do something they wanted to. Tantrums you can let the child get it out and in a couple minutes it is done. This is not the same for a meltdown. Meltdowns are the child letting you know that their body just can't take it anymore. The child is not in control once a meltdown strikes.

So PLEASE, PLEASE, remember, Sensory Processing Disorder is REAL!

Thursday, December 16, 2010

Countdown!

Changing the date on the calendar
In hopes to calm sweet precious Benji down with the excitement of Christmas coming we picked up a numbered advent calendar. It was a minimal investment of $2 or $3 and has calmed the excitement down so that we can handle it. Now instead of waking up every morning and asking if today is Christmas, Benji runs to his calendar to check and then changes the date.

We are so glad that his "Countdown to Jesus' Birthday" calendar is doing a magnificent job at letting him know how long to the date and he can visually see the date coming closer. We only wish we got it sooner. :)

Tuesday, December 14, 2010

Snow is.... yucky!

A brief moment that the snow was okay
So, here in middle Tennessee we got a nice bit of snow. In our yard it measured just a touch over 5 inches. For us, that is a lot of snow.

For Benji, he normally like the 2-3 inches we get with the temperatures right around freezing. This snow is completely different for him. We haven't been over 26 for 3 days. Our lows have been in the single digits. (In fact this morning it was 4') He went outside on Sunday, when the picture was taken, but once he got cold he was done with it.

Between the snow being wet and cold, and not going to school this week has been hard for Benji. He is hoping that they go back tomorrow, but only the roads will determine that. Potential for more ice/snow/sleet is coming tomorrow and we are pretty sure that would knock out hopes of school for the rest of the week here.

Stay warm! Be Blessed!

Wednesday, November 24, 2010

Totally Out of Sync

While dealing with the insanity with a school system that we are frustrated with, we noticed that Benji was having a whole lot more sensory related behavior issues. He was being VERY whiny, sensory seeking, sleepy and not wanting to eat. The not wanting to eat, we contributed to his allergy medication. He takes flonase and if he takes it straight for more than two weeks his appetite wanes. That did not explain the rest though.

Tuesday morning we made a sick visit appointment for Wednesday afternoon thinking we should get him checked before the holiday but not in a rush because there was no fever.

Benji got to the doctor's office and was all over the place. In the exam room he was climbing and jumping and "crashing" and ... you get the picture. The doctor comes in and we go over everything. Benji had a low grade fever of 99.3, his ears and nose was clear and aside from a little irritation his mouth/throat was good too. Blood pressure was good (100/68) and even though he had a mucus-y cough his lungs were clear.

So Dr. talked with me for a few minutes and I shared that in Kindergarten the "Slap Cheek Measles" was going around and so was Strep. Dr. didn't think it was strep but with Benji's aortic valve he figured best to check.

Benji has strep.

Doctor - "Why do you think he is sick?"
Mom - "He is out of control with his sensory issues."
Doctor - (after getting test results back) "You might be on to something there."

Monday, September 20, 2010

A Hopefully Typical Day

When this post actually posts, Benji and his brothers will be in our Expedition on the way to school for another wonderful magnificent Monday. (We believe in thinking positively. Our words are powerful)

Benji was adorable Friday when our family went to celebrate Uncle Marc's (and Uncle Frank's) birthday. As we were leaving he grabbed one of those cable internet mailing cards and decided it was Un Ma-cs birthday card "that you have to turn over". He was very animate about the card and I don't think I can explain it and give justice. For about 30 minutes he just wouldn't let it go.

Saturday, Benji has made a new friend that he thinks is just his own. We will call him T. The three boys had a WONDERFUL time playing with T. They played outside, they played in our house, they played next door. They had a lot of fun. Just where Benji was perservating on the card Friday, after T had to go he just kept on about how he missed T and hoped to see T again.

This weekend reminds our family how unique Benji is. Now we just pray his "quirky" tendencies calm down and he has a good week.

Tuesday, August 24, 2010

Sensory Friendly GiveAway for Back To School!

Soft Clothing and Hartley's Life with 3 Boys is doing a giveaway that is sensory friendly for back to school! There is a ton of stuff they are giving away to one winner. The catch is that it ends at midnight on September 1, 2010. So you are going to want to head over to the Soft Clothing :: Back To School Giveaway.

Here's the stash:

3 pack of Soft Sensory Tees in color/size of your choice
6 pairs of Soft Seamless Socks
"This is Gabriel Making Sense of School" by Hartley Steiner
Lands End Uniform Backpack
Classpack of Crayola Colored Pencils
Tactile Fidget
Desk Buddy Sensory Bar
6-Pack of Mead Spiral Wide Ruled Notebooks
4-BG Flash Drive
12-Pack of Crayola Washable Fine-Tip Markers
Peltor Junior Noise Protector Headphones
Classic Pencil Grip Pencil Sharpener
4-Pack of Sharpie Highlighter Pens
3-Pack of Pink Paper-Mate Rubber Erasers
2 Mead Classic Composition Books
Plastic Hinged School Tool Box
Max's Mud-Natural Sculpting Dough
Pocket Stixx Oral Motor Tubes

While you are over there, check out what all Soft Clothing has to offer!


(product links are for examples only, may not be exact item in giveaway.)

Tuesday, August 03, 2010

Gross Motor Excellence

Mom took me into physical therapy this morning for my yearly evaluation. I had a hard time concentrating. Mom thinks with all the back to school stuff and routine changing that I am over-stimulated. My pt agrees and is concerned.

The awesome news is that for 5 1/2 - 6 year old skills I have them pretty good. I need to work on throwing accurately and catching but I meet standards! WooHoo!

The down side... I am VERY moody, I am getting fixated on things instead of paying attention, I am sensory seeking (i.e. sucking thumb ALL the time, twirling hair ALL the time, rolling on the floor) and I am upset I don't have a schedule yet.

School starts for me full time Tuesday. Mom is concerned about my food allergies and how I will handle being in school. I really want to be in school. I tested with Ms. A and I really like her and her classroom. We just don't know if she will be my teacher or not. It's really hard not knowing.

Mom did find out this afternoon that there will be a transition meeting for my needs Friday morning. We are praying everything works out well. While my sensory stuff can get quite distracting, with the right help I can thrive in a regular educational environment.

Saturday, July 24, 2010

Reality points out Regression

As most parents know that have a unstructured summer break, their kids have a slight regression where they forget some things or start acting out do to lack of schedule.

Up until today, this is what I thought was going on with Benji.

He has wet the bed probably about 5 times in the last month, and while that may not be OMG bad, for him it is very unusual. Once he potty trained he never had an accident until now. To have 5 in the last month...

If night time pottying issues were the only issue I still wouldn't be really concerned.

We have noticed immature behaviors surfacing. Things like constantly sucking his thumb and twirling his hair. Throwing himself on the floor. Very much sensory seeking type behaviors. Also baby talk has come back.

With all of these behaviors I didn't really think it was that bad, until we went to the bowling alley today. Benji's sensory stuff really kicked in. Loud music, stimulating atmosphere, the process of bowling... midway through the first game he was wanting deep pressure hugs and his silky. We played two games and wasn't sure he would make it through the second one. He would put his head on the vent that bowlers use for their hands and let it blow his hair. He kept throwing himself on teh floor and rolling around. It wasn't the things he was doing that stood out though, it was the way he was doing them.

This all just brings back my concerns over the school change and his lack of Occupational Therapy. Just praying on that one. I already know the focus is going to be about the heart condition, but he has tone and sensory issues that have to be addressed for him to succeed in school.

How can a child learn if the classroom is distracting? How can a child learn if the noise hurts?

One day at a time and relying on God. That is the only way we can get through this.

There was one moment when we were getting ready to leave this morning that he just stared off. It took me shouting his name to acknowledge us. This isn't the first time, but shoot... I day dream and it looks like I am just staring off. *sigh*

Monday, June 28, 2010

Still wiggling

Having a difficult time with these two loose teeth. One is very loose and barely hanging on, but I am afraid to pull it. G3 has been helping this morning, but I think it is going to hurt so I stop her from pulling it.

See it?! It's very loose... the other one is just barely loose, but the dentist said it needs to come out too.

I tried to eat an apple last night, but it hurt. 

Mom says it will come out when it's time, I heard her telling daddy that. Plus I have had sensory issues with food, so why not with my teeth... I think it would help if I could take Tylenol, but we haven't been able to find the dye-free yet. I don't like it when mom crushes the Tylenol tablet and puts it in pudding.  It still tastes bad. 

Anyhow... keeping on the wiggling...  LOL

Just keep wiggling!

Monday, October 05, 2009

Slowing Overcoming...

So, Benji still has the cough with the flu. He's been fever free since Saturday. Slowly getting better. Couldn't tell he was sick during the day. It's at night that it all catches up with him.

The down side to this is that he missed the last two days of school before fall break and we are out for two weeks. So those of you with sensory kids can understand when I say it's been rough!

Being sick, schedule changing, not able to play outside cause it is raining, etc... is driving him crazy! So glad we found the Sonic collection at Game Stop last night for the PS2. It was only $12. So at least he can focus on playing it and have something to do.

We go to the dentist tomorrow for the regular check up/cleaning. I pray all will be okay there. He is oral defensive. Doesn't really like us messing with his mouth.

Friday, August 21, 2009

School is underway...

We have survived the first 3 weeks of school! YAY!!

School started for Benji on August 3rd. He goes to school for ½ day, 4 days a week. His school is a developmental preschool that is based on a reverse inclusion model. (It’s for special needs or developmentally delayed children and they bring in typically developing peers) I love what it does for Benji.

Benji started in his preschool just after his 3rd birthday, so he’s been in for a little over a year. He has responded so well! His speech has vastly improved, he tolerates change better, he is learning how to control his sensory issues too. Now if we can just get him to write…

Back to the last three weeks.

Week one, Benji did really good. He was complaining that he wasn’t in the same classroom from last year, but we talked about it and explained that you change classes as you get older and smarter. He already knew the teachers because pre-3 and pre-4 work together. This week the peers weren’t there.

Week two, EVERYBODY is at school this week. The week went very well at school. At home Benji was very emotional and didn’t want to go to school until we got there. Wednesday and Thursday he didn’t want to get up and get going. He had a little bit of a problem listening on Thursday, his teacher had to redirect him. After school we had to go to the allergy doctor.

This past week, Benji has been very sleepy and whiney in the mornings. We have finally gotten him convinced that his class is fun. Thinking that we are getting into allergy season, he has runny nose and congestion when he wakes up. He looks tired. On Wednesday he wasn’t wanting to do circle time. Got him some medicine and Thursday was a great day.

I am pretty sure that his behavior at school is much better than home. His teachers have a strict schedule and the kids have to go by it. At home we are seeing little blow ups until one of the siblings does something that offends him and then there is no stopping the meltdown… Praise God we were at home when they happened.

After PT this past Tuesday he was fatigued… his teacher said it only lasted about a half hour and then he rebounded.

Gotta work on morning exercises more. We did them the first week daily and then slacked off. I think they help him a lot. Jumping on the mini-tramp, situps on the exercise ball, lifting the weighted ball, sling swing…

Next week will bring more changes for the little man since mom is going to school herself. Praying the adjustment goes smoothly.

Thursday, July 23, 2009

Been Awhile

Wow... it has been a long time since I have updated here.

We are coming towards the end of our Summer Break. We have a little over a week to go and then everybody goes back to school on August 3.

Benji is moving up to the 4 year old class room in the developmental preschool. He has made much improvement in all areas, although he is still considered globally delayed.

In June we under went standard developmental testing along with autism screening. The doctor believes that Benji is more at risk for ADHD combined type than anything else. As the primary caregiver and mother of Benji, I disagree. The doctor believes it's the ADHD because Benji's attention span lasts about 20 minutes. Also because Benji has a hard time adjusting to schedule change. And when Benji is over-sensitized he gets hyper and has meltdowns.

Benji has sensory integration disorder. He is very tactile defensive. He is also sensory seeking. Examples... eating pancakes and Benji gets syrup on his hands, he has to get it washed off as soon as possible. Benji enjoys 'crashing' into the wall, or falling. We handle his sensory stuff by doing exercises. He jumps on the mini-tramp, swings in the sling swing, swims in the pool, body massage, bouncy ball, and stretching exercises. When doing things that will set off his tactile defensiveness we keep it to a minimum and at meals keep a damp wash cloth handy.

Benji also has food intolerances. His is VERY lactose intolerant tot he point we avoid lactose, casein, whey and anything that hints of having to do with cow's milk. Benji can not tolerate food dyes, specifically red 40 but others are suspected, we just discovered another chemical that sets him off too. (azodicarbonamide) His reaction is extreme hyperactivity and moodiness.

It has been known for quite some time that food intolerances can mimic ADHD. So why, when a child has known food intolerances are they still quick to point to ADHD?

I am disheartened right now when it comes to doctors listening to parents. I know my child. I also know that there is something going on. For now his labels are global developmental delay ~ NOS ... The Sensory Integration is I suppose an informal diagnosis now.

Our other concern with Benji right now is that we notice while he is sleeping there is a lot of restlessness. Normally that wouldn't bother me because I know little ones can be active in their sleep. But that combined with moments throughout the day where he just stares off has me concerned. Working on getting in to the doc... again. Praying the suspicion is wrong.

Wednesday, May 06, 2009

Finally, a little common sense

I was browsing Facebook earlier and saw a link that one of my FB friends posted.

My Child Has Autism and I Vaccinate
(http://www.blogher.com/my-child-has-autism-and-i-vaccinate)

I appreciate this article. Not because I dismiss the vaccination theory. I appreciate it because whether or not vaccinations with thermosil cause autism or not, my son's symptoms were not from his vaccinations.

We had genetics tell us that because nothing showed up on the select testing they did that it had to have been the vaccinations.

We have had pediatrician tell us there is nothing wrong with Benji when there are reports from several therapists saying otherwise.

We know we have a quirky kid. A quirky kid that we love. And we also know that there is something there. To have a doctor tell you that they would diagnose him with Asperger Syndrome but can't because his speech was significantly delayed confirms your belief that there is something going on. It's not that I want my child to be sick or to be labeled. But I know there is something going on.

We know he has the sensory integration disorder. He is tactile and oral defensive while sensory seeking with deep pressure. I praise the Lord that we are able to handle most of it by thinking ahead. For his deep pressure we have the mini trampoline for him to jump on, an exercise ball he can bounce on and a sling swing to swing in in the house.

For the defensive, it's difficult with the foods. Once he decides he isn't going to eat something, there really is no way around it. Unless you want a meltdown, because it goes beyond a tantrum. His tactile defensiveness we make sure to have a wash cloth or wet wipes around at all times. He HATES being icky, sticky, slimy, etc.

Anyhow... I know Benji's stuff isn't from the vaccinations. His regression started before the 18 month shots. And it escalated when we moved and our schedule changed.

Anyhow... just some thoughts today. I know I am jumbled and rambled... forgive.

Tuesday, March 24, 2009

The Good, The Bad, The Stimmy!

So, Benji went to the Child Development Center at Vanderbilt Children's for his suppose to be yearly developmental pediatric visit. His last visit was 18 months ago when he was diagnosed with the Disorder of Childhood and was referred over to Vanderbilt Bill Wilkerson to be checked out for Sensory Integration Disorder which he was then diagnosed with.

So, Dr. Cooper was glad to see us and reviewed Benji's progress with me. Or.. I should say I shared Benji's progress.
  • His Speech is almost completely caught up. He still has some articulation to work on and he needs to pronunciate better, but he is a talking machine once he gets going.
  • His fine motor skills are nearly on par. It's more of a stubbornness problem than not being able to do something. (i.e. He knows how to hold a pencil/crayon but chooses not to do it right)
  • Gross Motor is improving. He still needs to strengthen his core muscles and we still need to work on those ankles.
  • He is off the blood pressure meds for his heart. It's will be a year in May!
  • While he does have low sugar episodes, we catch them quickly and he recovers fine. Mostly happens when he has been playing all day outside and doesn't want to stop for anything.
Dr. Cooper appreciated my knowledge on what was going on. Which this is a soapbox of mine... Do parents just not pay attention to their kids? I mean really. Benji has some medical issues, so I do the research and I do what I can at home to help him. That's how we realized it was the cow's milk that was causing the colic when he was little. That's how we discovered the sensitivity to red 40. (OH MYwas it wonderful when we got rid of that! The hyper activity disappeared!)

Anyhow.. so Dr. Cooper thinks we should do pretty much the same testing we did last time and see what comes up. His non-official opinion is that Benji is either a quirky 4 year old or we are looking at Asperger Syndrome. This does not surprise me at all.
  • Ridgidty ~ Must have schedules. If normal routine changes he gets very non-compliant with anything. It completely disrupts him. (eating, sleeping, pottying, mood, etc)
  • OCD type ~ While this isn't as bad as it could be. Benji is very particular about how things are. If he puts something somewhere, it had better be there when he gets back. Things also have to be 'just so'. It's hard to explain... would you like to come over and see one day?
  • Obsession ~ for over two years the only thing Benji wanted was Cars. You know Disney Cars? It is still an obsession and he has moved to include Hot Wheels, Wall E, and Transformers with it. They are all mechanical and he loves to "help" work on the car or just to help with tools in general. He is also now obsessed with video games (PS2)
  • He is very sensory seeking. The deep pressure type. He loves getting in his sling swing all cozy and swinging. Also jumping on a trampoline. When he is seeking he will throw himself on the ground or against the wall and laugh.
  • While exercises have helped he is very tactile defensive. He will play in finger paints now but he doesn't like it and the second he thinks he is done he wants his hands cleaned.
  • Can't stand to be sticky, slimy, itchy, etc.
So... that was the visit with Dr. Cooper. We are waiting for the call to get the testing done.

Wednesday, March 11, 2009

IEP and such

Benji's IEP went well... OT discharged him, which didn't surprise me since his fine motor skills are on par. PT kept him because of his core strength and that his sensory seeking behaviors can be a problem. He likes to throw himself down for the deep pressure. This is not new, they are just seeing it more than they used to.

Right now we are on spring break and unfortunately the change in schedule has messed the little guy up. His potty training has slid some. He don't want to use the potty for his BMs, so I put him in pull ups, which causes him to not care if he urinates in his pants. So sensory stuff is fun!

Benji's birthday was March 2nd and he had his party the night before. He was so thrilled with all of his 'CARS' toys it wasn't funny. Made me glad we hit the dollar aisle at Target. Plus I got the walking talking Lightning McQueen for $15 on clearance at Walmart right after Christmas!

Other than that we are just taking things one day at a time.

Tuesday, December 09, 2008

Bear Hunt

So... last week at school Benji and his friends did a bear hunt. They also learned about bear. (Brown Bear, Bear Hunt, etc.)

We got a couple of the crafts they did from it today. I think Benji did a great job even though last Thursday was hard for him. (We think the bear hunt scared him or the anticipation got him worked up. He had a hard time listening Thursday.)



So... one bear was covered in glue and he put oatmeal on it. It's cute!

The other bear is a small paper plate with ripped construction paper and all glued on. It looks like he did a good job there.

This is such an improvement from just six months ago!

Benji still doesn't like to get sticky or to get paint or glue on his hands, but he sees that if he tolerates it long enough he can make the craft and enjoy it. Then wash hands. I am sorta glad he insists on being clean. His brothers could learn from that. LOL...

Monday, December 08, 2008

Echo Update

Cardiologist visit was uneventful. Praise the Lord.

Pulse-ox was 96% and Blood Pressure was 98.

Stats from right leg were 88 over 72.

Stats from right arm were 80 over 57.

This is without meds! The aorta looks great, no problems from the repair. The valve (aortic) is leaking but there has been little to no change since May.

Benji behaved wonderfully! He told Dr. Hermo all about his transformer Bumblebee. He stayed calm for the blood pressure and pulse ox. He was very curious about the echo but did as he was asked and laid still.

Benji has been okayed to do the Miracle Ball sports and T ball as long as the coaches understand he will need to rest more than normal and that heat will have a significant affect on him. (No problem there considering I am momma bear.)

OT went good. Robyn was impressed that he was willing to play in the shaving cream while "washing" the cars in the car wash. He was tired and distracted but it was expected some. She got him reined in and today was productive.

We have regressed heavily on potty training at home and out and about. He doesn't want to go. As I said a couple posts ago.. with family and friends, schedule changes and the Holidays... I don't think I will really push until January. I will be glad when the diaper chapter is over. He also is coughing this evening... hoping it's just drainage. Little guy hasn't ever really been sick.